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Bike for Life
Raised So Far
$ 130,108.50
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About Spinal Muscular Atrophy

Spinal Muscular Atrophy (SMA) is a rare, inherited disease that results in the loss of nerves in the spinal cord and weakness of the muscles connected with those nerves. The muscles most frequently affected are those of the neck and trunk that control posture, those of the leg and arm that control movement and the respiratory muscles which control breathing.

SMA is the number one genetic killer of children under two years of age, yet very few people have heard of the disease; 1 in 30 people carry the defective gene.


People with SMA generally appear normal at birth; the symptoms develop as early as three months in the most severely affected (Type I), around one to two years of age in the less progressively affected (Type II) and more rarely in late childhood or adult years (Type III and IV) in mildly affected individuals.

There is no known cure for SMA; historically, nearly half of those born with Type I SMA die before the age of two and children with Type II generally die before adulthood.  All people with SMA have a higher than normal risk of progressive disability and premature death.

About the Race

Stages for the ride will be completed as follows:

Day 1              Sydney to Toukley                          

Day 2              Toukley to Hawks Nest/Karuah

Day 3              Hawks Nest/Karuah to Diamond Beach

Day 4              Diamond Beach to Kempsey

Day 5              Kempsey to Coffs Harbour

Day 6              Coffs Harbour to Maclean

Day 7              Maclean to Byron Bay

Day 8              Byron Bay to Surfers Paradise     

Day 9              Surfers Paradise to Brisbane     

                          
The aim of the event is to raise funds for SMAAA and awareness of Spinal Muscular Atrophy as a genetic condition affecting a small number of people in our community, mainly very young children, leading to premature death and disability.  This ride aims to raise funds for much needed equipment and as we have very little government assistance. Equipment costs required by some of our SMA sufferers include – bi-pap breathing machine $8,000; manual wheelchair $5,000; power wheelchair between $15,000 to $30,000; hoists for bathing for adult sufferers can be over $20,000.

The SMAAA also hopes to fund a $100,000 research grant to find a cure for SMA, currently being explored at the University of WA; this is a real hope for our children’s future.

We have a lot to do and with no patron or dedicated donor support (not even government), families and friends like you are the ones who will make miracles happen.

 

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Sydney to Brisbane - Bike for Life
Creator   Peter Wright
Close at  Wednesday, 30 December 2009

WE HAVE BEEN OVERWHELMED BY THE SUPPORT WE HAVE RECEIVED SO FAR AND SINCERELY THANK ALL OUR SPONSORS. DONATIONS RECEIVED OFF WEBSITE:

BRIAN BARTELS, KEITH BEAVIS, CARL BARTELS $2000

LYN KIRBY $300.00

KIERAN MOFFAT $500.00

JIM & DIANNE ROSS $100.00

R O WRIGHT & CO $1000.00

JAMPOT INVESTMENT GROUP $100.00

LIONS CLUB NORTH LAKES $250.00

    Spinal Muscular Atrophy Association of Australia Inc*
Our purpose is to use our knowledge, experience and enthusiasm to support, educate and raise awareness for Spinal Muscular Atrophy.
FUNDOMETER
TARGET
$5,000.00

RAISED SO FAR
$18,750.00

Donate Now
SUPPORTERS
SUPPORTERSAMOUNTMESSAGE
Lisa, Eric & Jack Deily50.00Congratulations guys.
Peter Biazos50.00good luck with the fund raising.
VIVIENNE CLAMP200.00Congratulations Peter. May God bless you and your family.
Kay Phillips50.00To Peter Wright - I hope it isn't too late to add to the target for your bike ride fund raising event. I am sending my donation on behalf of Jack Parry.
Jas & Gab Wood300.00Sorry about the delay, well done on the ride mate.
Anonymous100.00PW-only bloke who had any idea...
Rebecca George20.00Hi Pete, I am donating a little late to offer words of encouragment but I hope you had a great ride. Bek (Dan's mate).
Steve Thomson50.00Steve Thomson of Coldy Holder Products Regarding Jack Parry
Amber Matthews50.00Well done Pete - great achievement
Joy Coey20.00Donated on behalf of Steve Parry. Good luck with your fundraising!
Dan Stewart100.00Congratulations Pete. A truly fantastic effort.
Fielke Family 100.00Good luck and all our love to the Parry family
Anonymous50.00Good luck and thanks for supporting the Parry family and young Jack Parry.
Dutton Cycles30.00Hi Peter - How could we not support such a great cause and customer. Only a small donation compared to your overall efforts, but we hope this goes a little way to supporting Spinal Muscular Atrophy. Please pop into the shop and let us know how the ride went. We'd love to include some photos and a write up of your efforts in our next email newsletter. Great job! Kelli, Kurt, Scott, Maca and Ryan, from Dutton Cycles, North Lakes.
Ron & Barb Baker50.00Good luck on the ride. Love and prayers to Steve, Simone & Jack Parry
Anonymous50.00Best wishes, Peter. Referred to you from Stephen Parry. Marty Box
Jan and John Tuck100.00Good luck with the ride. Our love to Steven, Simone and Jack
Pat, Naomi and Liam Byrnes100.00For Jack Parry and all the other kids who will benefit from your efforts.
The Ingram Family 100.00Hi Peter, we are friends of Simone and Steve Parry and their boy Jack. Good luck to you and all the riders.
Anonymous300.00 
The Cronin Family 100.00My car struggles up the Bulahdelah ranges. You're a better man than me doing it on a bike, Peter. And good luck also to the Parry Family. You're in our hearts and prayers.
Rem Bruijn100.00Good on you Peter. I am a friend of Steve and Simone Parry and am supporting you to support them.
Brock & Caroline Miller250.00We wish you all the best. Referred by Steven Parry, father of Jack Parry.
Jo, Steven and family Icke100.00Good Luck Peter on your SMA "Bike For Life" Ride. We were referred by Steve and Simone Parry on behalf of Jack.
Jennifer & Graham Anderson100.00In support of some kindy friends - Simone and Steve whose son Jack has been diagnosed with SMA. Good luck - wonderful cause - we hope that more can be discovered about this condition to help those families affected.
Robert Carter100.00This donation is in support of Steve and Simone Parry's little son, Jack who has been diagnosed with SMA.
David & Jackie Mc Ardle100.00Wishing you success in raising awareness for SMA. We were referred by Steve & Simone Parry on behalf of Jack.
Fiona & Steve Shaw & Tsokanos100.00Best of luck Peter for the ride! We were referred by Steve & Simone Parry on behalf of little Jack
Max & Judy Shaw200.00Good Luck Peter! We were referred by Steve & Simone Parry on behalf of Jack.
Michelle Chan100.00CONGRATULATIONS on your journey so far, ENJOY the ride ahead... I hope you have a gel seat Pete! Shell Chan and Pete Hanrahan X
Solrac Transport & Logistics Pty Ltd 100.00 
Ken & Dani McGovern250.00Best of luck for the rest of the ride Pete we love catching up with the videos and photos over here in Ireland. Look forward to well deserved drinks when we get back. Ken Dani & Aodhan McGovern
James Cubitt Architects 500.00Best of luck with the ride Peter. The show of support that you have raised so far is amazing. From Paul and Danielle (Jack Parry's Uncle and Aunty).
BEV SCHUTT DESIGNS 50.00Go Peter Go!!!
Anonymous50.00ride safe for a wonderful cause. from southern NSW clients
Stephen Cattanach250.00enjoy the ride!
Anonymous50.00 
Ashley Browne200.00All the best for the ride mate. When you hit the hills just call on Marto to come to the front to set the pace!
Jaimie Gordon250.00Good luck Pete.
Bob and Sue Reid200.00I hope all is going well and the support keeps growing
Fiona Taylor100.00Lots of luck Pete - all for a good cause. With love to you and your family Fiona Taylor x
Peter & Kerryn Suchting100.00Good luck on the ride. Referred to by Steven & Simone Parry.
Dylan Katzer100.00Good Luck Guys! For a great cause. Cheers!
Karrie Roger House100.00Good luck to you and all other riders. Good Effort
Jane Malhotra200.00Dear Pete. God speed. Much love from Chicago - the Malhotras
JOY SHEARER50.00Be blessed Peter & Peta for your faithfulness to your family and others.
Brendan Peel30.00This is to help support Steve Parry, one of my colleagues (Phil Gowers) customers in QLD, who referred us on behalf of Jack. I hope this little donation helps along the way, my heart goes out to all of you who have been affected by SMA, good luck with the ride Peter!
Susan Lowry50.00 
Cecily & Garth Collier500.00Good luck Peter. Thanks for doing the ride from Jack Parry's Grandparents.
Linda & Michael White100.00We can't wait to see a photo of you in your bike pants. We wish we could be there to ride with you but will be thinking of you from Darwin. You are an inspiration. Love Linda and Michael White
Mike Tina & Boys Klein300.00Good luck Pete and all the very best for the ride. We will be thinking of you and our beautiful girls and baby boy tommy.
Andrew Parry500.00Peter I hope you get a tail wind. Looking forward to shaking your hand in Brisbane.
Deb and Andrew Reed100.00Hi Pete. Good luck for the ride. Wishing you and your family all the best. From your long lost friends in Canberra.
Phil Thompson100.00 
Kim and Albert Panizza250.00Your cause is important and we hope that the ride is a success. Thank you also for your kindness to the Parry family.
Michael & Gail Virgona500.00Our thoughts are with everyone who is affected with SMA and we hope that some miracle cure or treatment is found. Good luck with your ride. Steve Parry is a friend of ours and we wanted to support you and him in some way.
Emily Pearse100.00 
Renae Leary250.00Hey Pete, Best of luck with your little one. Enjoy the ride. Renae
Ros & Keith Stevens50.00All or you have a safe trip
Mifsud & Associates Pty Ltd 100.00 
ESally Vickery50.00Best wishes from Greg and Sally Vickery
Robert Chan100.00Good luck on the ride. Take care of Parko. Would like to have him back in one piece
Michael Price220.00Wish I was bike-fit to join you guys! What a ride and what a great cause. All the best mate...
Tony & Val Box100.00Fran Parry is my cousin and I would like to support your endeavours
Philip Gowers250.00Good Luck Peter. Donation is on behalf Steven,Simone and Jack Parry
Michael & Helena Manley400.00 
Doug & Fran Parry1,000.00Good luck Peter. Thanks for all the help you have given Steve, Simone & Jack
Steve & Sarah Hundy300.00Our thoughts are with you, Pete. Go hard!
Chris & Maria Parry500.00Peter, thanks for your efforts! Love to Simone, Steve and Jack Parry.
Susan Stenhouse30.00Good luck, Peter. We were referred by Steve and Simone Parry on behalf of Jack.
Katrina Body50.00Go Peter! All the best for children with SMA. Love to Simone, Steve and Jack Parry.
Scott & Monique Wright250.00Good Luck Peter. On behalf of Jack Parry
Michael & Mirella Parry100.00Good luck Peter. We were referred by Steve and Simone Parry on behalf of Jack
Dan & Bernadette Perrier500.00Friends of the Parrys, ride well and be safe, we hope this can make a difference to all your kids.
Keith Rudd100.00With our best wishes Pete - Keith & Christine
Andrew and Debbie Rogencamp100.00Good luck Peter. We were referred by Steve and Simone Parry on behalf of Jack
Commerce Vision 250.00Good luck Peter. We were referred by Steve and Simone Parry on behalf of Jack
Steve & Simone Parry500.00Good luck Peter. Thanks for your recent help and thank you from Jack (16 months Type II)
Dan & Jodie 300.00 
Susan Shield100.00 
Denita Gibney100.00Hope you do well Pete. Trevor & Denita
Anonymous100.00Best of luck - a great effort and hope all goes really well!!
Sharon Careri100.00Hi Peter, I'm Woody's sister, he told me about your daughter, good luck with the fundraising and wishing you the best possible outcome for you and your family.
Anonymous50.00Good Luck Pete, I am Jason Wood's mum
Shift Miner Magazine 100.00Good luck Wrongy
Tim Smart500.00Doc, best of luck for the ride and congrats on the fantastic fundraising efforts. Inspirational.
Terry O'Sullivan100.00Good luck with this Peter, nearly there with the target.
Anonymous250.00Good Luck Peter! Cheers, Dan
Hymans Asset Management 500.00 
Ron Vairy250.00GLSFB
Trudy Aurisch1,000.00Best of luck Peter! Happy to support such a worthy cause!
Andrew Clive150.00 
Glenn Wortel250.00 
Lesa Priddle500.00 
Chris Jenyns100.00 
Shan Guneratne100.00Hope you will succeed in creating a greater awareness of your daughters condition and bring relief to all affected with it
Anonymous150.00 
Jeff Gibson500.00We take out hat off to you, now go hard go fast and stay upWright. Looking forward to the post celebrations...best wishes Jeff & Ninik
Gerard Paynter150.00 
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