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The Friends of Sammy Joe Foundation Trichothiodystrophy,Xeroderma Pigmentosum and Cockayne's Syndrome Trust Fund

Fundraise, donate & share to show your support

  • 6Fundraisers
  • 41Donors
  • Shares

Fundraiser Leaderboard

Top Individuals
  • AUD $732
  • Rick Notari
  • AUD $578
  • Steve Gioskos
  • AUD $575
  • Rick Notari
Top Teams
  • AUD $732
  • Rick Notari - Melbourne Marathon Fundraiser Page
  • AUD $578
  • Steve Gioskos
  • AUD $575
  • Rick Notari - Great Ocean Road Half Marathon

The Friends of SammyJoe Foundation is a charitable trust , we help to raise money for the children and young adults who are living with Trichothiodystrophy, Xeroderma Pigmentosum and Cockayne Syndrome , we raise money for the children and young adults of Australia .We help to provide funding for equipment , solar protective clothing as the children are allergic to UV light .

Fundraising Opportunities

RunWest 2020

Melbourne Marathon 2019

Sydney Running Festival 2019

Noosa Classic 2019

City 2 Surf 2019

Sunshine Coast Marathon 2019

Bundaberg Sugar | Cane2Coral 2019 10th Anniversary

Stadium Stomp Gabba 2019

Stadium Stomp MCG 2019

Stadium Stomp Adelaide Oval 2019

Stadium Stomp SCG 2019

SMH Half Marathon

NAB RunWest 2019

Port to Pub 2019

Bowral Classic 2018

Bowral Classic 2019

Melbourne Marathon 2018

Pub 2 Pub 2018

Noosa Classic 2018

Bridge to Brisbane 2018

City2Surf 2018

Run Melbourne 2018

Giro d'Canberra 2020

The Color Run 2018 | Melbourne DAY

Twilight Running Festival 2018

Clare Classic 2018

The Color Run 2018 | Canberra

Run Warrandyte

The Color Run 2017 | Perth

The Color Run 2017 | Townsville

The Color Run 2017 | Sydney (August)

Vietnam & Cambodia Cycle - Adventure Charity Challenge

Trek Great Wall - Adventure Charity Challenge

Huma Trek Everest Base Camp Open Challenge

Huma Trek Inca Trail Open Challenge

The Color Run Night | Sydney 2017

The Color Run 2017 | Gold Coast

Twilight Running Festival 2017

Walk Larapinta Charity Open Challenge

Spartan Race 2019

Clare Classic 2020

Mudgee Classic 2020

McDonalds Brisbane Marathon

McDonald's Brisbane Marathon 2020

Swimming for a cause

It's Christmas

Happy Hanukkah

Fundraising at Work

Bar Mitzvah

Bat Mitzvah

Making a Difference

Special Occasion (Celebration)

In Memory

In Celebration

Personal Challenge

Running for a cause

Cycling for a cause

It's my birthday

We are getting married

Giving Season Appeal

RunWest 2020

Melbourne Marathon 2019

Sydney Running Festival 2019

Noosa Classic 2019

City 2 Surf 2019

Sunshine Coast Marathon 2019

Bundaberg Sugar | Cane2Coral 2019 10th Anniversary

Stadium Stomp Gabba 2019

Stadium Stomp MCG 2019

Stadium Stomp Adelaide Oval 2019

Stadium Stomp SCG 2019

SMH Half Marathon

NAB RunWest 2019

Port to Pub 2019

Bowral Classic 2018

Bowral Classic 2019

Melbourne Marathon 2018

Pub 2 Pub 2018

Noosa Classic 2018

Bridge to Brisbane 2018

City2Surf 2018

Run Melbourne 2018

Giro d'Canberra 2020

The Color Run 2018 | Melbourne DAY

Twilight Running Festival 2018

Clare Classic 2018

The Color Run 2018 | Canberra

Run Warrandyte

The Color Run 2017 | Perth

The Color Run 2017 | Townsville

The Color Run 2017 | Sydney (August)

Vietnam & Cambodia Cycle - Adventure Charity Challenge

Trek Great Wall - Adventure Charity Challenge

Huma Trek Everest Base Camp Open Challenge

Huma Trek Inca Trail Open Challenge

The Color Run Night | Sydney 2017

The Color Run 2017 | Gold Coast

Twilight Running Festival 2017

Walk Larapinta Charity Open Challenge

Spartan Race 2019

Clare Classic 2020

Mudgee Classic 2020

McDonalds Brisbane Marathon

McDonald's Brisbane Marathon 2020

show more

Recent Fundraisers

  • Rick Notari
  • The Great Ocean Road Marathon 2014
  • AUD $575.00
  • Rick Notari
  • Melbourne Marathon Festival 2012
  • AUD $732.85
show more

Recent Donors

  • AUD $15.90
  • Caroline B
  • AUD $50.00
  • Anonymous
  • AUD $42.40
  • Virginia Lakos
  • AUD $26.50
  • Leanne Duca
  • AUD $265.00
  • Rish Chaudhuri
  • AUD $53.00
  • Riccardo Notari

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