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The Friends of Sammy Joe Foundation Trichothiodystrophy,Xeroderma Pigmentosum and Cockayne's Syndrome Trust Fund

Fundraise, donate & share to show your support

  • 5Fundraisers
  • 6Donors
  • Shares

Fundraiser Leaderboard

Top Individuals
  • $732.85
  • Rick Notari
  • $53.00
  • Steve Gioskos
  • $0.00
  • Maria Liistro
Top Teams
  • $575.00
  • Rick Notari - Great Ocean Road Half Marathon
  • $0.00
  • The Friends of Sammy Joe Foundation

The Friends of SammyJoe Foundation is a charitable trust , we help to raise money for the children and young adults who are living with Trichothiodystrophy, Xeroderma Pigmentosum and Cockayne Syndrome , we raise money for the children and young adults of Australia .We help to provide funding for equipment , solar protective clothing as the children are allergic to UV light .

Fundraising Opportunities

Nepal Trek Annapurna Open Charity Challenge

Melbourne Marathon Festival 2017

Blackmores Sydney Running Festival 2017

The Color Run 2017 | Adelaide

Stadium Stomp Gabba 2017

Stadium Stomp SCG 2017

Stadium Stomp Adelaide Oval 2017

Stadium Stomp MCG 2017

Great Ocean Road Running Festival

The Color Run Night | Melbourne 2017

Real Insurance Sydney Harbour 10k & 5k 2017

The Color Run 2017 | Melbourne DAY

The Color Run 2017 | Perth

Bowral Classic 2017

The Color Run 2017 | Townsville

The Color Run 2017 | Sydney (August)

Brisbane Marathon Festival 2017

Huma Charity Challenge - Vietnam & Cambodia Cycle Challenge

Huma Trek Great Wall Open Challenge

Huma Trek Everest Base Camp Open Challenge

Huma Trek Inca Trail Open Challenge

The Color Run Night | Sydney 2017

The Color Run 2017 | Gold Coast

Friendlies | Cane2Coral 2017

Miss Muddy

Twilight Running Festival 2017

Walk Larapinta Charity Open Challenge

Making a Difference

Special Occasion (Celebration)

In Memory

In Celebration

Personal Challenge

Running for a cause

Swimming for a cause

Cycling for a cause

It's my birthday

We are getting married

Nepal Trek Annapurna Open Charity Challenge

Melbourne Marathon Festival 2017

Blackmores Sydney Running Festival 2017

The Color Run 2017 | Adelaide

Stadium Stomp Gabba 2017

Stadium Stomp SCG 2017

Stadium Stomp Adelaide Oval 2017

Stadium Stomp MCG 2017

Great Ocean Road Running Festival

The Color Run Night | Melbourne 2017

Real Insurance Sydney Harbour 10k & 5k 2017

The Color Run 2017 | Melbourne DAY

The Color Run 2017 | Perth

Bowral Classic 2017

The Color Run 2017 | Townsville

The Color Run 2017 | Sydney (August)

Brisbane Marathon Festival 2017

Huma Charity Challenge - Vietnam & Cambodia Cycle Challenge

Huma Trek Great Wall Open Challenge

Huma Trek Everest Base Camp Open Challenge

Huma Trek Inca Trail Open Challenge

The Color Run Night | Sydney 2017

The Color Run 2017 | Gold Coast

Friendlies | Cane2Coral 2017

Miss Muddy

Twilight Running Festival 2017

Walk Larapinta Charity Open Challenge

show more

Recent Fundraisers

  • Rick Notari
  • The Great Ocean Road Marathon 2014
  • $575.00
show more

Recent Donors

  • $53.00
  • Jackie Cristiano
  • $106.00
  • Alyse G
  • $15.90
  • Anonymous
  • $268.00
  • Real Estate City
  • $106.00
  • Damien Borella
  • $40.00
  • Tina Dib

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