Prader-Willi Research Foundation Australia Ltd.

We exist to transform life for families living with Prader-Willi syndrome, a non-inherited genetic condition impairing physical, mental and psychological wellbeing. Caused by an abnormality in chromosome 15, people with PWS have low muscle mass, impaired cognition, mental illness including severe anxiety and psychosis, rages,  a failed appetite mechanism and numerous medical complications. They require 24/7 food security and supervision (to prevent a fatal binge eating episode) and help with all their daily activities. Families are doing it tougher than any other families living with developmental disability (ACAD study, Uni Sydney). We aim to find transformative treatments to give life to people with PWS and their families.